What We Do
Information and support
Education and awareness
We are proud to collaborate with prestigious professional bodies such as The Royal College of Obstetricians and Gynaecologists, The Royal College of Nursing, and The Association of Early Pregnancy Units to provide information to healthcare professionals. We provide opportunities to learn from people’s lived experiences of ectopic pregnancy and represent the patient’s voice. This enables healthcare services to be patient-led and equips healthcare professionals to support their patients with excellent care.
The Trust provides information to online, television, and print media on the subject of ectopic pregnancy. TV programmes, local and national newspapers and leading magazines consult The Trust when including ectopic pregnancy in their content. The Trust’s ambassadors, volunteers, trustees and team members also participate in media interviews.
Information provided by the Trust is signposted to by health information websites such as the NHS as a source of quality health information.
The EPT is a stakeholder for the introduction of and subsequent update to the NICE clinical guideline on ectopic pregnancy and miscarriage (now NG126 and formerly CG154).
We hear first-hand accounts from people who experience ectopic pregnancy and their partners who share their lived-experiences.
We are equipped to be able to provide views from those with lived-experiences to inform help inform research on ectopic pregnancy.
Working with others to effect change
PBCN represents UK charities whose focus includes improving care throughout the path to parenthood before, during and after pregnancy and after losing a baby or pregnancy. The group collaborates to influence the Government and the NHS to improve care for parents.
- The EPT strives to ensure that those who experience early pregnancy losses through ectopic pregnancy are represented. The Director of the EPT is appointed as co-deputy chair of the Network.
All-Party Parliamentary Group on Baby Loss brings together MPs and Peers from across parties to work on this vital issue. The APPG’s overall aims are to develop policy that supports families dealing with the grief and loss of a baby and to raise awareness of what more can be done by the government, Parliament or other agencies to help those affected.
- The EPT has been a part of the Group from inception in 2016. By participating in discussions, The EPT constantly ensures that ectopic pregnancy and early pregnancy loss remain within the Government’s agenda. APPG Baby Loss Twitter
Baby Loss Awareness Week takes place annually from 9th to 15th October and is an opportunity for bereaved parents and their loved ones to acknowledge and remember their losses. It is also a chance to raise awareness of the emotional impact of pregnancy and infant loss, and the scale of the tragedy, which affects up to one in five families in the UK. Baby Loss Awareness Week is a collaboration of a number of charities united in their support for families who experience the death of a baby including Sands, Bliss, Child Bereavement UK, The Miscarriage Association, and Tommy’s as well as the EPT.
- We are proud to be one of the founding partners of the collaboration for Baby Loss Awareness Week, at the forefront of commemorating the all-too-brief lives of babies lost through ectopic pregnancy. We have participated in Baby Loss Awareness Week annually since inception as one of the founding charities (alongside Sands, ARC and The Miscarriage Association) and remain part of the core Working Group.